Tag: Baby loss
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The number one piece of advice I would give anyone who hasn’t had kids yet
Men and women are pressured, maybe equally, maybe women a little more to have kids. Once college is over and a career is started, a common question seems to become “when are you getting married?” Soon after marriage, the question that seems to come is “when are you having kids?” It’s a concern a lot…
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Things I Wish I Knew When I Was Pregnant
I have had a total of three pregnancies- my first ended at 28 weeks with a partial abruption and severe pre-eclampisa. She was only 1lb 11.5ozs and 13 inches long and spent a total of 8 1/2 months in NICU. She’s now a small but healthy 7 year old. My second was relatively uncomplicated but…
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When my seven year old came home from the NICU
She was 8 months old, development of a newborn and was still tiny. She was on oxygen, feeding tube and heart monitor. I tried taking her out of the crib a few times but we had to switch at first from the major oxygen machine (plugged in to the wall) and switch to a small…
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When I lost you
When I lost you, not only did I lose getting to know a person. I also lost hopes and dreams for the future. I lost everything I drempt you would be and every potential achievement you could have made. I lost a tiny hand in my hand and a chance to be your mommy. I…
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I’ve been cheated
I’ve been cheated out of knowing a little person. Cheated out of seeing that little person grow. Cheated out of watching that first step, hearing those first words or the first “mommy.” I never got to celebrate those milestones, first birthday or any birthday. Never got to dry her eyes after she cried. Never got…
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I started a new facebook page
I started a new facebook page mainly trying to spread some awareness as I learn about EDS and the other issues I’m learning I have. https://m.facebook.com/New-Age-Dream-Girl-704151713114993/
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Being a taboo parent- I don’t want sympathy. I just want to be able to talk about all my kids.
Being a special needs parent shouldn’t be as isolating nor as awkward as it is. If you have been through a long term nicu stay, it should not be met with awkward sympathy nor should it automatically shut other parents up. I mean, yes, back when I was living at nationwide children’s hospital alone with…