Tag: Anencephaly awareness
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My writing has been featured
A while back I submitted a “Share your story” post about losing my Cassandra to Pickle & Poppet. They submitted the post to “ABloggingGoodTime” and they selected it as their featured post this past week.
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The number one piece of advice I would give anyone who hasn’t had kids yet
Men and women are pressured, maybe equally, maybe women a little more to have kids. Once college is over and a career is started, a common question seems to become “when are you getting married?” Soon after marriage, the question that seems to come is “when are you having kids?” It’s a concern a lot…
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Things I Wish I Knew When I Was Pregnant
I have had a total of three pregnancies- my first ended at 28 weeks with a partial abruption and severe pre-eclampisa. She was only 1lb 11.5ozs and 13 inches long and spent a total of 8 1/2 months in NICU. She’s now a small but healthy 7 year old. My second was relatively uncomplicated but…
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When I lost you
When I lost you, not only did I lose getting to know a person. I also lost hopes and dreams for the future. I lost everything I drempt you would be and every potential achievement you could have made. I lost a tiny hand in my hand and a chance to be your mommy. I…
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I’ve been cheated
I’ve been cheated out of knowing a little person. Cheated out of seeing that little person grow. Cheated out of watching that first step, hearing those first words or the first “mommy.” I never got to celebrate those milestones, first birthday or any birthday. Never got to dry her eyes after she cried. Never got…
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A few things 30 year old me wishes 22 year old newly pregnant me had known.
I have had a total of three pregnancies- my first ended at 28 weeks with a partial abruption and severe pre-eclampisa. She was only 1lb 11.5ozs and 13 inches long and spent a total of 8 1/2 months in NICU. She’s now a small but healthy 7 year old. My second was relatively uncomplicated but…
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March for Babies – Support and Join a team for Anencephaly Awareness WV
This is my team for the March of Dimes March for Babies. If anyone wants to join or donate, please feel free to contact me. https://www.marchforbabies.org/Fundraising/Team?teamId=873029&teamEventId=2831684&si=82f9beeb-ff29-466a-88d8-15ceac1ab8ef&PersonId=5492115
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I started a new facebook page
I started a new facebook page mainly trying to spread some awareness as I learn about EDS and the other issues I’m learning I have. https://m.facebook.com/New-Age-Dream-Girl-704151713114993/
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Being a taboo parent- I don’t want sympathy. I just want to be able to talk about all my kids.
Being a special needs parent shouldn’t be as isolating nor as awkward as it is. If you have been through a long term nicu stay, it should not be met with awkward sympathy nor should it automatically shut other parents up. I mean, yes, back when I was living at nationwide children’s hospital alone with…