I cut gluten out of my diet again. This time, I’m better educated than the first time (I’ve done 3 elimination diets over the years- all three times for different amounts of time and all 3 times I had benefits that were noticeable). This time, I’m doing it after being suggested by multiple professionals and even told to act like I have Celiac and avoid it.
The problem with not being diagnosed by a blood test, but being professionally diagnosed as having Gluten Intolerance is what to say when I am at a restaurant. I cross contaminated myself once by picking salad around the croutons, getting crumbs and ending up running back and forth to the bathroom all morning the next morning. I have read more than one example of people being purposely contaminated by self righteous waiters who assumed they were following the trend and giving them regular food instead of gluten free food so what am I supposed to say when a waiter or cashier asks why I’m wanting the gluten free menu? Do I lie and say I have Celiac? From what my doctor told me, what I did (eliminate it and readd) that’s enough for him to prescribe a gluten free diet to his patients since he has dealt with so many false positive and false negative Celiac blood screens, he no longer uses the tests to confirm or deny the results.
I did find major benefits when I cut it in the past (over the summer from July to November) and reverted back in November and December. Because of the results I got when I cut it in the past (lost 20lbs in 3 months, got rid of my IBS morning diarrhea, was able to drink coffee again with no issues, had more energy, felt better, 0 arthritis flares- just to name a few differences) my doctor told me to ignore the negative Celiac panel and live like I have Celiac Disease since I do have autoimmune issues and gluten itself does play a role (I went on a processed gluten free diet- to avoid feeling better due to eating healthier foods- I ate a ton of gluten free pasta and didn’t cut dairy)
I guess when I get myself into the full swing again, I need to look at other things. I ate a lunch of baked fish (no breading), baked potato and mixed vegetables and my blood sugar dropped within an hour of eating. I have been told to eat sweet potatoes instead of white and to avoid white everything (flour, bread, sugar, etc) due to my reactive hypoglycemia. I’ve also been advised to stay on the low glycemic diet as well as cutting gluten (and not by medical professionals, but due to self testing and elimination diets- diary. I haven’t been tested, but I did find out I’m lactose intolerant as well)
I really wish I could gain the self control to go on the Autoimmune Paleo diet. It’s only 30-60 days and would probably help more than this random trial and error I’ve been doing.
On the other side, my healthy daughter (2 years old) has just had a stool sample taken in and has an order for a full GI panel as well as the Celiac panel. She’s had diarrhea and we have eliminated dairy for the past 2 weeks. We have tried giving her regular milk (got diarrhea again) then we tried giving her cheese and other dairy items- once again, got diarrhea again so it does appear dairy at least is an issue but since we’ve been dealing with more diarrhea from her than just the past 2 weeks (and a rash that comes with it) and our older daughter had a positive gene test for the Celiac gene, it takes around 2 years for an autoimmune disease to start showing, I guess it’s time to get her screened for the first time. Our older daughter has to have the screening on a regular basis and she probably will as well. Once I get the gluten free diet fully down for myself, I may start looking into talking to the pediatrician and testing both of my girls (closer monitored to make sure they don’t miss anything needed)
I truly don’t understand why people want to go on this as a diet just to “lose weight” or “fit in” with other people. It’s more expensive, more restrictive and a huge pain when everyone around you is having cake and you’re having to say “no.” I kept re introducing it as a way of trying to convince myself I had no actual symptoms from it so I could go back to eating normal foods- unfortunately, I couldn’t ignore the symptoms and felt sick 100% of the time (even a few times I didn’t realize I ate it). I’m no longer eliminating it as a trial and am now avoiding it and doing the research to “live like I have Celiac” since that’s what my doctor told me to do.
I do have to wonder if beauty and hair products also count- I have Eczema on my hands and face and Seborrheic Dermatitis on my scalp. I’ve started using sensitive skin cleanser (Dermalogica) and moisturizing facial masks for the past few weeks and I LOVE Hand Food from Ulta (hand lotion and scrub) for my dry hands (thanks to the cold weather, Hashimotos and Eczema- fun combo)
The Seborrheic Dermatitis has been an embarrassment for years. I’ve had it since I was a child and it looks like I have dandruff or worse- but it’s just dead skin cells. When people get close enough they can see it’s dead skin but I’ve had 2 managers tell me I needed to get rid of it. If it was that easy, it would have been gone years ago.
I use T-Gel daily and that keeps it from itching, unless I start sweating. I was told it was SD but I’m pretty sure it’s Eczema since I get Eczema outbreaks on my hands and face anyways.
My featured image is from when I was 24, a new mom and the toddler was my oldest- who’s now almost 7.