Health · Uncategorized

EDS, post 30 can your body bounce back?

I know your metabolism takes a slight hit at 30, larger hit at 35 and every 5 years or so keeps shrinking. I’m still heavier than I was pre-kids and reality is hitting me. I knew I no longer had my pre-baby body, but will I be able to go back?

I accepted the fact that pregnancy made my hips more of a problem area than they already were. I only wore a larger size (11-13 in high school) for that reason, but had an hourglass figure. When I dropped to a 14, I tried on some 17s and couldn’t get them past my hips. That was when I read that juniors and adult sizes are made different (1,3,5, etc are juniors. 2,4,6, etc are adult). Juniors are made narrow in the hips where adult jeans are made wider in the hips.

I do know that with Ehlers Danlos, collagen is affected and where it makes your skin stretchy, it seems it may be harder to just bounce back. My scars fade but they still look strange when they heal. I don’t know much else about EDS but I do have an appointment, not only with a genetic specialist, but a specialist who lives with EDS herself. But that’s in a little bit. Right now, I’ve been researching trying to find foods that can help, workouts good enough to help lose weight and tone up but also safe for Osteo and loose joints and anything else that could help me with shrinking back down.

In the past 2 years, I’m down from 220 to about 170. I’m down from a size 20 to a size 14-16. I still have 40lbs left and hoping to get down to a 6ish or 8, maybe and I have 5 years in my mind to do it. If I can get down to my goal, fix what I need to fix diet wise and perfect my ingredient reading I should be able to maintain despite my Hashimotos. I’m seeing that even thyroid isn’t as much of an excuse as people use it. I dropped 20lbs in 4 months on a good dose of thyroid medication and cutting 1 ingredient out. I’m almost 1 month back to the normal (gluten free) lifestyle and finally feeling back to how I was feeling. I just had my thyroid levels tested again and they were perfect.

Right now, I’m trying to buy less processed foods. I have quit drinking Mello Yello (but I did switch to Diet coke for the time being), I’m eating 1 grain meal a day (if that) and the rest are cooked or salad. I do need to cut condiments and I still am drinking my Starbucks double shots (1 a day), I also started to notice my sugar drops when I eat potatoes so I’m switching to sweet potatoes.

The problem is when you have multiple diagnosis’s with several recomendations for diets. Where I have obvious issues with gluten, gluten free is needed (unless I want to spend all day cramping and in the bathroom), I had the diabetic low glycemic diet recommended to me for the reactive hypoglycemia. Cutting everything that was recommended to me feels restrictive. It also makes my OCD mind feel like I’ll be depriving myself and feels like it’s a black/white situation instead of- eat this way and you’ll feel great, eat that way and feel like crap.

I’m working on disassociating food with pleasure or anything related to emotions and trying to associate it with fueling my body and nothing more. Mindfulness helps that. Taking time to savor what I eat and pay attention to it is what I’m working on. Salad tastes great, so does fruit. Sugar and snacks that are heavily processed taste like chemicals but are an addiction- I’ve read all about sugar addiction and cold turkey is the way to go with kicking it. I’ve been thinking about trying a 1 month sugar free diet to try to break it. Just not sure if I have the will power currently. I will start it at the beginning of a month this year, though. Just have to build up and do further research into it to go in armed instead of half assing it.

In my picture, I was 18. I was constantly working out but didn’t know half of what I know now. I was also healthy.

I wasn’t skinny, but I was a good 30lbs smaller than I am now.

Health · Parenting · Uncategorized

We took my 2 year old to the ER a few weeks ago. 

We were told to keep her away from dairy and her diarrhea (reason we took her) was likely caused by a virus. Well, we took her off dairy and her diarrhea cleared up. We reintroduced it many times and the very last time my mom attempted to give her cows milk, she spit it out and didn’t want to drink it. Each time it has given her diarrhea. It’s lasted way more than 10 days (did test positive for a virus- this specific one lasts 10 days and it’s been well over that and she still gets diarrhea when she eats yogurt, most cheese, ice cream or milk. She’s also developing a taste for my gluten free snacks instead of normal. I have read picky eating can be a sign of a food intolerance. We are pretty sure lactose intolerance (I am) because the diarrhea has been a recurrent issue her whole life. We have an order to have her tested for Celiac due to my medical issues, her sisters gene and her symptoms. 

If she isn’t able to to back to cows milk, it’ll be all three of us women in the house who don’t drink it. Her older sister could easily live without dairy and I’m lactose intolerant myself. 

This is a whole lot of fun going through the tests, dealing with the diaper and trying to figure all this stuff out. Even with the medical help, it is still too long a process. 

Health · Uncategorized

Day 2 gluten free

I cut gluten out of my diet again. This time, I’m better educated than the first time (I’ve done 3 elimination diets over the years- all three times for different amounts of time and all 3 times I had benefits that were noticeable). This time, I’m doing it after being suggested by multiple professionals and even told to act like I have Celiac and avoid it.

The problem with not being diagnosed by a blood test, but being professionally diagnosed as having Gluten Intolerance is what to say when I am at a restaurant. I cross contaminated myself once by picking salad around the croutons, getting crumbs and ending up running back and forth to the bathroom all morning the next morning. I have read more than one example of people being purposely contaminated by self righteous waiters who assumed they were following the trend and giving them regular food instead of gluten free food so what am I supposed to say when a waiter or cashier asks why I’m wanting the gluten free menu? Do I lie and say I have Celiac? From what my doctor told me, what I did (eliminate it and readd) that’s enough for him to prescribe a gluten free diet to his patients since he has dealt with so many false positive and false negative Celiac blood screens, he no longer uses the tests to confirm or deny the results.

I did find major benefits when I cut it in the past (over the summer from July to November) and reverted back in November and December. Because of the results I got when I cut it in the past (lost 20lbs in 3 months, got rid of my IBS morning diarrhea, was able to drink coffee again with no issues, had more energy, felt better, 0 arthritis flares- just to name a few differences) my doctor told me to ignore the negative Celiac panel and live like I have Celiac Disease since I do have autoimmune issues and gluten itself does play a role (I went on a processed gluten free diet- to avoid feeling better due to eating healthier foods- I ate a ton of gluten free pasta and didn’t cut dairy)

I guess when I get myself into the full swing again, I need to look at other things. I ate a lunch of baked fish (no breading), baked potato and mixed vegetables and my blood sugar dropped within an hour of eating. I have been told to eat sweet potatoes instead of white and to avoid white everything (flour, bread, sugar, etc) due to my reactive hypoglycemia. I’ve also been advised to stay on the low glycemic diet as well as cutting gluten (and not by medical professionals, but due to self testing and elimination diets- diary. I haven’t been tested, but I did find out I’m lactose intolerant as well)

I really wish I could gain the self control to go on the Autoimmune Paleo diet. It’s only 30-60 days and would probably help more than this random trial and error I’ve been doing.

On the other side, my healthy daughter (2 years old) has just had a stool sample taken in and has an order for a full GI panel as well as the Celiac panel. She’s had diarrhea and we have eliminated dairy for the past 2 weeks. We have tried giving her regular milk (got diarrhea again) then we tried giving her cheese and other dairy items- once again, got diarrhea again so it does appear dairy at least is an issue but since we’ve been dealing with more diarrhea from her than just the past 2 weeks (and a rash that comes with it) and our older daughter had a positive gene test for the Celiac gene, it takes around 2 years for an autoimmune disease to start showing, I guess it’s time to get her screened for the first time. Our older daughter has to have the screening on a regular basis and she probably will as well. Once I get the gluten free diet fully down for myself, I may start looking into talking to the pediatrician and testing both of my girls (closer monitored to make sure they don’t miss anything needed)

 

I truly don’t understand why people want to go on this as a diet just to “lose weight” or “fit in” with other people. It’s more expensive, more restrictive and a huge pain when everyone around you is having cake and you’re having to say “no.” I kept re introducing it as a way of trying to convince myself I had no actual symptoms from it so I could go back to eating normal foods- unfortunately, I couldn’t ignore the symptoms and felt sick 100% of the time (even a few times I didn’t realize I ate it). I’m no longer eliminating it as a trial and am now avoiding it and doing the research to “live like I have Celiac” since that’s what my doctor told me to do.

I do have to wonder if beauty and hair products also count- I have Eczema on my hands and face and Seborrheic Dermatitis on my scalp. I’ve started using sensitive skin cleanser (Dermalogica) and moisturizing facial masks for the past few weeks and I LOVE Hand Food from Ulta (hand lotion and scrub) for my dry hands (thanks to the cold weather, Hashimotos and Eczema- fun combo)

The Seborrheic Dermatitis has been an embarrassment for years. I’ve had it since I was a child and it looks like I have dandruff or worse- but it’s just dead skin cells. When people get close enough they can see it’s dead skin but I’ve had 2 managers tell me I needed to get rid of it. If it was that easy, it would have been gone years ago.

I use T-Gel daily and that keeps it from itching, unless I start sweating. I was told it was SD but I’m pretty sure it’s Eczema since I get Eczema outbreaks on my hands and face anyways.

 

My featured image is from when I was 24, a new mom and the toddler was my oldest- who’s now almost 7.