Parenting · Uncategorized

Rules of my home

No matter how old you are or who you are, nobody is to lick the cat

There will be no throwing of chairs or any other objects at the cat

The cat is to be pet on demand and fed every time someone goes into the kitchen. The cat food is FOR the cat, it is not meant for human consumption.

No licking windows

No licking walls

No licking anything

These are the rules for all whom enter my home, no exceptions- even the tiny people who live here.

I never thought I would have those rules until I had kids… I never even thought I would have to say “dont lick the cat.”

Parenting · Uncategorized

When I lost you

When I lost you, not only did I lose getting to know a person. I also lost hopes and dreams for the future. I lost everything I drempt you would be and every potential achievement you could have made. I lost a tiny hand in my hand and a chance to be your mommy.

I lost seeing you smile, hearing you talk, hearing you laugh and picking you up when you fell.

I always wonder if you would be more like your daddy or me. Would you look like a mix of both of us or favor one more?

Would you be an artist, athlete or studious? Would you prefer cats or dogs?

Would you be girly like your sisters or the tomboy of the group? What would your favorite flower be? Favorite color?

What would your personality be like? Would you love or hate school?

When I lost you I have so many questions I will never know the answer to and I will never get to experience.

When you died, so did those hopes and dreams for the future. Your future. My future as your mommy and our future as a family

Parenting · Uncategorized

I’ve been cheated

I’ve been cheated out of knowing a little person.

Cheated out of seeing that little person grow.

Cheated out of watching that first step, hearing those first words or the first “mommy.”

I never got to celebrate those milestones, first birthday or any birthday.

Never got to dry her eyes after she cried.

Never got to look into those eyes and hear “I love you mommy”

Never will get to teach her how to drive.

Never will see her first day at school.

Never will comfort her first heartbreak.

Never will send her off to college.

No mothers day gifts from her.

Or cards.

Or hugs.

Will this ever get easier? It’s been five years without her. Will this pain go away? We would be signing her up for kindergarten. She would be in preschool. This year is hitting me harder. It’s a milestone and I’m still not ready to say goodbye.

I’m a member of a club. I never signed up for. I want out. I want my membership revoked. I want my cassie back. I want this family whole.

Health · Parenting

A few things 30 year old me wishes 22 year old newly pregnant me had known.

I have had a total of three pregnancies- my first ended at 28 weeks with a partial abruption and severe pre-eclampisa. She was only 1lb 11.5ozs and 13 inches long and spent a total of 8 1/2 months in NICU. She’s now a small but healthy 7 year old. My second was relatively uncomplicated but we lost her. She was born at 36 weeks due to me going into a painless labor and I wasn’t allowed by the doctors to go into labor. She died of a condition called Anencephaly (absence of the skull) and lived for 3 hours after birth.

My third was totally complication free and she was born at 37 weeks (once again, due to the complications of my oldest) and was 7lbs11ozs and 21 inches long- they told us she would have been a 9-10lb baby if she was born term.

I had each baby at 23, 25 and 27 years, I’m 30 now so I have spent almost my full adult life being called “mommy.”

I read all the books, blogs and joined all the support forums I could find. What to Expect was my bible through my first pregnancy and through her early years but nothing could prepare me for the almost 9 months of hell I was in for after having my baby.

When I was 22 and newly married, I found out I was pregnant. I was young, naive and even though I knew it was a huge sacrifice, I had a glorified image of pregnancy and motherhood. I knew it wouldn’t be a walk in the park and that I wouldn’t have near the freedom I had before but I still imagined taking the baby to baby and me classes, taking her out in cute little outfits with friends (since most of mine, at that time were also pregnant or new mommies) and late night cuddles. I thought of play dates and hanging out with friends would simply end up taking place at kid friendly places instead of bars. I had no idea what the dark side of pregnancy involved. I had heard of conditions like Pre-Eclampsia but the thought never crossed my mind that it could happen to me.

I was asked the question “What would 30 year old me go back and tell newly pregnant 22 year old me?” so here are a few pieces of advice I wish I had listened to or received when I was pregnant, especially when I was pregnant with my two older.

  1. Take folic acid- lots of it. I didn’t realize how important it really was. I did make sure my pre-natals had it, but that was it. After dealing with Pre-E and losing another baby to Anencephaly, I joined a support group for people who lost babies to the disorder and that was when I read about folic acid and how vital it is to healthy pregnancies. I also learned about the MTHFR and after asking for a simple blood test, I found out I had a more severe form of the lesser mutation- which means my body only processes about 7% of the folic acid I eat.
  2. Swelling all over to the point where you do not look human IS NOT NORMAL. Don’t call Labor and delivery, go in to the ER to get checked- especially if swelling in the hands and face comes with headache and lightheadedness or any other sign of high blood pressure. Pre-Eclampsia is serious, but can be managed if it’s caught early on.
  3. Lay off the baby books- especially if you have a preemie- seriously, cut it out. If your baby doesn’t develop by the books (either advanced or behind) they will stress you out more than help- it’s nice to know what “normal” development is, but if you start playing comparisons, it will make you lose your mind.
  4. Go ahead and complain about the morning sickness, crampy feelings, bloated feeling, headaches, mood swings, exhaustion and everything else- being pregnant sucks and it’s ok to not enjoy the symptoms- it’s the end result we all want.
  5. Do not freak out after being given the epidural. It doesn’t make all feeling go away- just the pain.
  6. Enjoy the last little bit of freedom- the sleepless nights do not last long (be a few months, they WILL sleep through the night) but that small window of time in between feels like an eternity- and there will be times you will wake up freaked out in the middle of the night because your baby sighed and you thought they were choking- that is normal.

As of right now, those first three pieces of advice are the most important things I wish I had known. I know I could never know, but I feel that if I had known to start taking folic acid before we started trying, our middle daughter would be here with us- about to turn 5.

After my kids were born, there are things I wish I had known.

1. My social life would die. I always had an active social life from college on out- but between location differences between my friends, weeding out the bad influences and age differences between our kids, I have lost touch with most of my old friends. Lack of time tends to get in the way of meeting new people in similar situations (although, working moms with working husbands and busy schedules may not be the types I’d want to meet when it comes to play dates and getting kids together). It’s not bad losing social life- If your old friends were bad influences (into drinking/drugs/etc) but it does rub off on your kids as they get older and have a lower interest in being around other kids.

2. Don’t let your kid sleep in your bed with you. Even just one night. Our 7 year old fell out of her big girl bed two times in one night when she was 3. We allowed her to sleep with us that night. She’s now 7 and we still can’t get her out of our bed (we could, but she actually panics at the thought of sleeping alone). We know she’s spoiled, but fear and anxiety is real and is a real problem when part of a child’s special needs is that they have trouble communicating with others.

3. Having special needs kids changes how you interact with all areas of your life. I’d love to take her to parties and to movies- and sometimes she does great. Other times, we will spend the full night in the bathroom with me trying to calm her down. We do not know how she will react to any given social interaction and sensory overload is a real problem. It has taken me 30 years to know and handle my own issues (loud noises- mainly, loud crowds, she has the same)

I recently read about one business starting a sensory sensitive day and I’m going to have to try taking her. I want to get her around more “normal” developing children, but other special needs kids tend to get on well with her- either way, she’s starting to take interest in socializing so we need to nurture it.

 

I may create a continuation of this post when I think of more. I know there are probably a lot of things that have slipped my mind. What are some things you wish you had known when you were newly pregnant?

 

Parenting · Uncategorized

In 2 days I will have a 7 year old

I never believed when people said time flies by, but my tiny little doll sized baby will soon be 7. She’s reading, telling time and knows the days of the week. She knows which therapies she has on what days and reminds us on a regular basis.

I don’t know how her future will look, it’s 50/50, but she is already showing herself to be more intelligent than people give her credit. She’s kind, sweet, goofy and loving and I’m so lucky to call her my daughter.

Parenting · Uncategorized

You Know You’re A Parent When…

You and your husband are the only ones awake and you announce you need to potty.

You put the kids in bed hours ago but Disney/Nick Jr is still playing in the background

You have rules such as- 1. No licking the cat. 2. No licking the door. 3. No licking your sister and 4. No throwing objects at the cat.

You know the pain of stepping on a Shopkinz toy (hurts worse than a Lego)

You have to buy a new vacuum almost annually due to overuse.

Your shampooer is constantly out and running.

You have random stains in your mattress, mattress pad, couch and chairs- you’re not sure what they are but you know it’s food.