So, my 2 year old daughter and I ate out for my birthday with the rest of the family (My parents, husband and 6 year old). We had one of the best waitresses I’ve had- to the point I thanked her.
She made sure the croutons were on the side so I could eat salad, didn’t include cheese and added the dressing on the side so she could eat. She walked us through the allergy menu and made sure the items for me were totally gluten free and the items for her were fully milk/dairy free. Neither of us had reactions after eating there (I made the mistake of trying to eat around croutons last time and spent the whole next morning hurting and in the bathroom)
I swear, though, trying to get the hang of reading labels to make sure something is truly dairy free (not just lactose free) is really adding extra time to grocery shopping and the number of times we slip and give her something we don’t realize has it is too much.
I know, just like I have learned most of the red flags for gluten, it will take time but right now, dairy and cows milk free is overwhelming.
We have her next appointment tomorrow so I’m hoping we will have an answer- cows milk, casein, allergy, intolorance or virus (unlikely since its lasted since last month). I hate playing the waiting game.
We were told to keep her away from dairy and her diarrhea (reason we took her) was likely caused by a virus. Well, we took her off dairy and her diarrhea cleared up. We reintroduced it many times and the very last time my mom attempted to give her cows milk, she spit it out and didn’t want to drink it. Each time it has given her diarrhea. It’s lasted way more than 10 days (did test positive for a virus- this specific one lasts 10 days and it’s been well over that and she still gets diarrhea when she eats yogurt, most cheese, ice cream or milk. She’s also developing a taste for my gluten free snacks instead of normal. I have read picky eating can be a sign of a food intolerance. We are pretty sure lactose intolerance (I am) because the diarrhea has been a recurrent issue her whole life. We have an order to have her tested for Celiac due to my medical issues, her sisters gene and her symptoms.
If she isn’t able to to back to cows milk, it’ll be all three of us women in the house who don’t drink it. Her older sister could easily live without dairy and I’m lactose intolerant myself.
This is a whole lot of fun going through the tests, dealing with the diaper and trying to figure all this stuff out. Even with the medical help, it is still too long a process.
I started a new facebook page mainly trying to spread some awareness as I learn about EDS and the other issues I’m learning I have.