Tag: NICU
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NICU Survival Guide
So, your pregnancy didn’t end the way you wanted to. You may have had a sick baby full term or given birth to a preemie. Either way, you had to watch your baby get whisked off to the NICU. What is the NICU? Why do babies have to go? The NICU stands for Neonatal Intensive…
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When my seven year old came home from the NICU
She was 8 months old, development of a newborn and was still tiny. She was on oxygen, feeding tube and heart monitor. I tried taking her out of the crib a few times but we had to switch at first from the major oxygen machine (plugged in to the wall) and switch to a small…
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In 2 days I will have a 7 year old
I never believed when people said time flies by, but my tiny little doll sized baby will soon be 7. She’s reading, telling time and knows the days of the week. She knows which therapies she has on what days and reminds us on a regular basis. I don’t know how her future will look,…
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I introduced the EDS, This is about my life with OCD
As far back as I can remember, I struggled with everything needing to be perfect. My first memory related, was when I was in early elementary school. I had to have my work perfect. By perfect, I mean it had to look absolutely perfect- if I looped a “B,” I had to erase but if…
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I started a new facebook page
I started a new facebook page mainly trying to spread some awareness as I learn about EDS and the other issues I’m learning I have. https://m.facebook.com/New-Age-Dream-Girl-704151713114993/
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How I found out about EDS.
From the time I was little, I always remember walking around with what felt like a bad sprained ankle. I was always twisting it, so I had no idea it wasn’t sprained. I also have hips rotated backwards, so my feet and knees stick out to the side. I could never run very well. I’d…
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Being a taboo parent- I don’t want sympathy. I just want to be able to talk about all my kids.
Being a special needs parent shouldn’t be as isolating nor as awkward as it is. If you have been through a long term nicu stay, it should not be met with awkward sympathy nor should it automatically shut other parents up. I mean, yes, back when I was living at nationwide children’s hospital alone with…