Tag: I have hashimotos

Ever wonder what it’s like trying to get into shape with a condition like Ehlers Danlos?
Health · Uncategorized

Ever wonder what it’s like trying to get into shape with a condition like Ehlers Danlos?

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You put on a workout video. They have 2 types of people in the background- the ones doing the main moves and the ones doing the modifications for people who are new to working out or have various limitations.

You try the limitations. You start to feel and hear your shoulder or knee pop. Then you modify the modifications because you remmeber last time you did a major workout and threw your knee so badly out it took several hours for it to pop back in- by that time, you were in the waiting room at the ER because this time you couldn’t walk nor put pressure on your leg and it took your dad on one side and your husband on the other side to help you hobble out of the house and into the car, every pot hole and bump in the road sent a searing pain through your knee and you were crying- until it “magically” popped back into place and the pain was gone.

Most of the time, if you threw a joint out, it would pop right back in so that time stood out in your mind because of the pain. After that, you were nervous about working out again so you would do it sporadically.

Your history of c sections combined with diagnosis of Hashimotos mixed and you knew you needed to workout. When you met with the genetic specialist who gave you the EDS diagnosis, you asked her. She told you water aerobics and swimming- stuff easy on the joints but you have no access to a pool so you got stuck. That put you back on square one and back to the risky exercises.

I’m down 50lbs but about 20 was from being hyperthyroid right after my daughter was born. I went down from 220 to about 180, back up to 190 then from 190 to 170ish after getting my thyroid regulated post surgery and switching to the gluten/dairy free lifestyle. Now, I’m about 30 away so I need more than changing my diet. I prefer the Stronger workouts (livestrong) but I have to do the modifications and sit out from certain exercises- it still works pretty well since they are laid out.

 

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I’m so sick of feeling sick

The Dream GirlLeave a comment

Almost every day I feel run down.

No matter how much sleep I get, I can’t seem to feel rested. I feel drained all the time, my brain is so foggy I have officially quit joking about being an air head.

My mood swings from depressed to anxious- every time I start to think I have some mental illness, my labs come back.

The depression is deeper than I ever felt- as an outcast teenager, when I lost my grandma, lost my dog or lost my child- I had situational depression all those times- never this deep. This depression is unrelenting and feels like I’ll never be able to get up. It makes me feel like no one cares, that I have no one- my kids would be better off and so would my husband and my parents- it makes me feel like I just need to isolate myself. Every time I start to ask my doctor for help- I get my lab results.

I feel nauseated, my stomach bloats out, I have to run back and forth to the bathroom- or I get the opposite.

My palms start burning to the point I can feel the heat radiate, or the opposite and even at 90 degrees, I’m shivering.No amount of blankets can help me warm up and no stripping of layers helps me cool. Heat is worse- it makes me overheat to the point I’ll start to feel like i have heat exhaustion. I have got heat sick just from hot flashes.

 

I don’t know what’s worse- the crying spells from the depression, the panic attacks from the anxiety that come on with 0 warning, the fatigue that NOTHING helps, the digestive symptoms, mood swings or the fact that people look at me like I’m faking it all. The fact that it’s an invisible illness that makes me feel all this.

It’s never going to go away but you can’t see it. You don’t see my mood swings- until the symptoms get severe- I’ve been learning to hide them.

You don’t see the cold or hot flashes- unless I start sweating

You don’t see the depression, anxiety or the nausea but it’s there. It’s real and I’m ready to give it up. I don’t want Hashimotos anymore. I don’t want to keep having to feel this way in between dosage adjustments. They started me at 25, I’m now up to 88 and my appointment is next week- I’m in full swing and can tell my levels are off. I was going to go to the ER, but there is no use- ERs can’t handle chronic- they treat temporary problems. I really wish I could figure out how to deal while I’m in between doses because this isn’t living.

Just went in for my thyroid ultrasound and follow up
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Just went in for my thyroid ultrasound and follow up

The Dream GirlLeave a comment

It was my first ultrasound since my surgery 2 years ago.

I found out the cysts on my right side (only side I have left) haven’t grown, so I don’t need to have another scan for about 2 years but I had my lab work done and they had to up my dose.

It seems every 3 months, I go hypo but this time I didn’t get such extreme symptoms.

I have been really tired and a little grumpy but I figured it was stress and the hours I’ve been working. Starting my days around 6am and ending around 11pm tends to wear anyone down over time and it’s my normal.

I also have been slowly gaining weight, after losing 20lbs, I’m up 9 and I’m not eating any different (I’ve been gluten free since July of last year, stopped November and December and restarted in January and have been strict since)

I have been waiting for the “right” time to go fully dairy free as well, that will help bloating but I can’t explain the weight gain and weight loss- both happen with me not doing anything different.

I guess when I’m in a bad mood, tired or even gain 1lb I can count that as my thyroid. I have started to notice that I only really have anxiety attacks when my thyroid is off so I guess that’s a good indicator and it helps me knowing that my anxiety seems to solely be linked to my thyroid. Maybe if they could get that under control, it will help that issue.

I usually have more extreme symptoms, but I guess since they caught me when I was slightly elevated as opposed to a major elevation, the symptoms didn’t have time to come on as bad.

Either way, you’d think after 2 years, they would have me straight by now… This is getting frustrating. I have gone from 25 to 50, 75 and now I’m at 88. I guess my next step will be 100.