Tag: Fatigue

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I’m so sick of feeling sick

The Dream GirlLeave a comment

Almost every day I feel run down.

No matter how much sleep I get, I can’t seem to feel rested. I feel drained all the time, my brain is so foggy I have officially quit joking about being an air head.

My mood swings from depressed to anxious- every time I start to think I have some mental illness, my labs come back.

The depression is deeper than I ever felt- as an outcast teenager, when I lost my grandma, lost my dog or lost my child- I had situational depression all those times- never this deep. This depression is unrelenting and feels like I’ll never be able to get up. It makes me feel like no one cares, that I have no one- my kids would be better off and so would my husband and my parents- it makes me feel like I just need to isolate myself. Every time I start to ask my doctor for help- I get my lab results.

I feel nauseated, my stomach bloats out, I have to run back and forth to the bathroom- or I get the opposite.

My palms start burning to the point I can feel the heat radiate, or the opposite and even at 90 degrees, I’m shivering.No amount of blankets can help me warm up and no stripping of layers helps me cool. Heat is worse- it makes me overheat to the point I’ll start to feel like i have heat exhaustion. I have got heat sick just from hot flashes.

 

I don’t know what’s worse- the crying spells from the depression, the panic attacks from the anxiety that come on with 0 warning, the fatigue that NOTHING helps, the digestive symptoms, mood swings or the fact that people look at me like I’m faking it all. The fact that it’s an invisible illness that makes me feel all this.

It’s never going to go away but you can’t see it. You don’t see my mood swings- until the symptoms get severe- I’ve been learning to hide them.

You don’t see the cold or hot flashes- unless I start sweating

You don’t see the depression, anxiety or the nausea but it’s there. It’s real and I’m ready to give it up. I don’t want Hashimotos anymore. I don’t want to keep having to feel this way in between dosage adjustments. They started me at 25, I’m now up to 88 and my appointment is next week- I’m in full swing and can tell my levels are off. I was going to go to the ER, but there is no use- ERs can’t handle chronic- they treat temporary problems. I really wish I could figure out how to deal while I’m in between doses because this isn’t living.

Just went in for my thyroid ultrasound and follow up
Health · Uncategorized

Just went in for my thyroid ultrasound and follow up

The Dream GirlLeave a comment

It was my first ultrasound since my surgery 2 years ago.

I found out the cysts on my right side (only side I have left) haven’t grown, so I don’t need to have another scan for about 2 years but I had my lab work done and they had to up my dose.

It seems every 3 months, I go hypo but this time I didn’t get such extreme symptoms.

I have been really tired and a little grumpy but I figured it was stress and the hours I’ve been working. Starting my days around 6am and ending around 11pm tends to wear anyone down over time and it’s my normal.

I also have been slowly gaining weight, after losing 20lbs, I’m up 9 and I’m not eating any different (I’ve been gluten free since July of last year, stopped November and December and restarted in January and have been strict since)

I have been waiting for the “right” time to go fully dairy free as well, that will help bloating but I can’t explain the weight gain and weight loss- both happen with me not doing anything different.

I guess when I’m in a bad mood, tired or even gain 1lb I can count that as my thyroid. I have started to notice that I only really have anxiety attacks when my thyroid is off so I guess that’s a good indicator and it helps me knowing that my anxiety seems to solely be linked to my thyroid. Maybe if they could get that under control, it will help that issue.

I usually have more extreme symptoms, but I guess since they caught me when I was slightly elevated as opposed to a major elevation, the symptoms didn’t have time to come on as bad.

Either way, you’d think after 2 years, they would have me straight by now… This is getting frustrating. I have gone from 25 to 50, 75 and now I’m at 88. I guess my next step will be 100.

Health · Uncategorized

EDS, post 30 can your body bounce back?

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I know your metabolism takes a slight hit at 30, larger hit at 35 and every 5 years or so keeps shrinking. I’m still heavier than I was pre-kids and reality is hitting me. I knew I no longer had my pre-baby body, but will I be able to go back?

I accepted the fact that pregnancy made my hips more of a problem area than they already were. I only wore a larger size (11-13 in high school) for that reason, but had an hourglass figure. When I dropped to a 14, I tried on some 17s and couldn’t get them past my hips. That was when I read that juniors and adult sizes are made different (1,3,5, etc are juniors. 2,4,6, etc are adult). Juniors are made narrow in the hips where adult jeans are made wider in the hips.

I do know that with Ehlers Danlos, collagen is affected and where it makes your skin stretchy, it seems it may be harder to just bounce back. My scars fade but they still look strange when they heal. I don’t know much else about EDS but I do have an appointment, not only with a genetic specialist, but a specialist who lives with EDS herself. But that’s in a little bit. Right now, I’ve been researching trying to find foods that can help, workouts good enough to help lose weight and tone up but also safe for Osteo and loose joints and anything else that could help me with shrinking back down.

In the past 2 years, I’m down from 220 to about 170. I’m down from a size 20 to a size 14-16. I still have 40lbs left and hoping to get down to a 6ish or 8, maybe and I have 5 years in my mind to do it. If I can get down to my goal, fix what I need to fix diet wise and perfect my ingredient reading I should be able to maintain despite my Hashimotos. I’m seeing that even thyroid isn’t as much of an excuse as people use it. I dropped 20lbs in 4 months on a good dose of thyroid medication and cutting 1 ingredient out. I’m almost 1 month back to the normal (gluten free) lifestyle and finally feeling back to how I was feeling. I just had my thyroid levels tested again and they were perfect.

Right now, I’m trying to buy less processed foods. I have quit drinking Mello Yello (but I did switch to Diet coke for the time being), I’m eating 1 grain meal a day (if that) and the rest are cooked or salad. I do need to cut condiments and I still am drinking my Starbucks double shots (1 a day), I also started to notice my sugar drops when I eat potatoes so I’m switching to sweet potatoes.

The problem is when you have multiple diagnosis’s with several recomendations for diets. Where I have obvious issues with gluten, gluten free is needed (unless I want to spend all day cramping and in the bathroom), I had the diabetic low glycemic diet recommended to me for the reactive hypoglycemia. Cutting everything that was recommended to me feels restrictive. It also makes my OCD mind feel like I’ll be depriving myself and feels like it’s a black/white situation instead of- eat this way and you’ll feel great, eat that way and feel like crap.

I’m working on disassociating food with pleasure or anything related to emotions and trying to associate it with fueling my body and nothing more. Mindfulness helps that. Taking time to savor what I eat and pay attention to it is what I’m working on. Salad tastes great, so does fruit. Sugar and snacks that are heavily processed taste like chemicals but are an addiction- I’ve read all about sugar addiction and cold turkey is the way to go with kicking it. I’ve been thinking about trying a 1 month sugar free diet to try to break it. Just not sure if I have the will power currently. I will start it at the beginning of a month this year, though. Just have to build up and do further research into it to go in armed instead of half assing it.

In my picture, I was 18. I was constantly working out but didn’t know half of what I know now. I was also healthy.

I wasn’t skinny, but I was a good 30lbs smaller than I am now.

I never thought I’d be the type to let myself go after a marriage and these past 2 years (last year and this year) I’m getting myself back.
Health · Uncategorized

I never thought I’d be the type to let myself go after a marriage and these past 2 years (last year and this year) I’m getting myself back.

The Dream GirlLeave a comment

I have been with my husband almost 8 years now. Before he and I met, when I was younger, it would take me over an hour just to leave my house. My hair, make up, clothes and everything had to be perfect. After we had our first baby, I had an extra 60lbs (went from 125 to 198 at the end of my first- complicated- pregnancy) and I started stress eating (before that, if I was stressed, I couldn’t eat). I managed to lose 10lbs down to 180 but stuck. I did workouts sporadically but the stress turned to fatigue and even laziness.

With my second pregnancy (the one we lost) my weight stayed the same after the baby was born and I was too depressed to really work on it.

By the time I had my third, I gained up to 220- higher than I ever weighed and was a size 18. This time, I was more active but my thyroid went into hyper due to the toxic cyst and I lost 30lbs in the first 6 weeks and another 20 recently. Now that I’m down to about 170 and a size 14/16 I’m gaining the motivation to continue.

After I had my first baby, I continued with my hair, make up and skin routine but over time, lost it.

In the past few months, I’m working on changing myself. I realized a while back I let myself go so now I’m working on undoing the damage before it becomes harder.

My daily skin routine now involves pre cleanse and cleansing, sometimes exfoliating (not every day- usually 3 times a week to every other day), spraying my face with either rose water or Dermalogica’s Multi-Active toner, moisturizer, then I’ll put on a mask 1-2 times a week. That’s my evening before bedtime routine. My morning routine is the same but after the moisturizer, I’ll put my make up on. That full routine can keep my eczema from acting up too bad. I have found that to keep it down, exfoliating and moisturizing is key.

I’ve studied skin care professionally (I’m a licensed skin therapist) so keeping my skin next to perfect is key. Luckily for me, when my eczema breaks out, it’s mostly still skin colored but the itching does me in. I still get compliments on my skin on a daily basis- I get rid of zits immediately, don’t have black heads and you would have to look at my skin under a magnifying glass to see my pores- my skin has been my pride and thanks to that, I still look as young as I did when I met my husband. I’m heavier now, but I’m also working on losing that (I did make it from 130 to 220, I’m back down to 170 and working on losing the last 40lbs if possible). I’m down 50lbs from 220 to 170 from two years ago (hit my peak weight at the very end of my last pregnancy- but there will be no more pregnancies so I can focus on losing the last bit)

I’m also looking at what types of workouts are best for people with Osteo arthritis and Ehler Danlos Syndrome to try to get my body toned back up.

I’ve been working on trying to get back to how I was in college. Back then, I was active and felt great. I also looked better. I’m not sure how to handle my thinning and really dry hair (the wrong shampoos grease my hair up and make it look wet, when it dries it dries like straw. It’s hard having greasy skin in that one area of my body but then having dry hair. The thyroid issues don’t help at all.)
The selected image is what I looked like in October. I’m hoping to get back to a slightly older version of what I looked like when I met my husband. I’m not trying to look like a teen again (or very young adult) since I’ll be 30 this week, I just want to be about the same size, weight and to feel good again.

The first picture was taken right before my husband and I met (same week)

The one with the hat was shortly after we got together, before I got pregnant and the third was our first Christmas with our new baby (she was 9 months old)

Health

Random thoughts

The Dream GirlLeave a comment

It’s been cold for the past week. Along with the cold, my arthritis has flared. I normally ignore the flare ups and go on with my life but my spine was inflamed and I pulled a muscle. Today is in the 50s-60s and it’s my first day back down to a pain level of about 4.

The only thing I changed was going from gluten free to a normal diet. My doctor told me to ignore the celiac panel they ran about 5 months ago when I first got ready to go gluten free because that test could have been wrong and to go back on the gf diet. I’m debating going back now vs waiting until after Christmas. I know eating a normal diet with wheat (the reason I went gf- it’s much easier to find specific gf foods than wheat free) is hurting (literally- bad cramping and other digestive issues) but Christmas cookies and all that.. Not sure why it’s an issue now when back in June when my daughter’s gastro specialist first recommended to me to try it for myself and all the way up to this month, it was easy to follow. I’ve only been studying it for 4 years and almost have shopping mastered. Dairy is easier to stay away from, for me. I don’t like milk, some yogurt and cheese is ok in small amounts and I’m not huge on ice cream.

I do know my IBS is almost fully gone (99%) when I cut both out fully. My doctor told me since gluten is the main trigger, it sounds like I’m gluten intolerant and not IBS. Only thing is stress and lack of sleep are also triggers and with a toddler and a child in school, you tend to end up lacking in sleep a lot.