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EDS, post 30 can your body bounce back?

I know your metabolism takes a slight hit at 30, larger hit at 35 and every 5 years or so keeps shrinking. I’m still heavier than I was pre-kids and reality is hitting me. I knew I no longer had my pre-baby body, but will I be able to go back?

I accepted the fact that pregnancy made my hips more of a problem area than they already were. I only wore a larger size (11-13 in high school) for that reason, but had an hourglass figure. When I dropped to a 14, I tried on some 17s and couldn’t get them past my hips. That was when I read that juniors and adult sizes are made different (1,3,5, etc are juniors. 2,4,6, etc are adult). Juniors are made narrow in the hips where adult jeans are made wider in the hips.

I do know that with Ehlers Danlos, collagen is affected and where it makes your skin stretchy, it seems it may be harder to just bounce back. My scars fade but they still look strange when they heal. I don’t know much else about EDS but I do have an appointment, not only with a genetic specialist, but a specialist who lives with EDS herself. But that’s in a little bit. Right now, I’ve been researching trying to find foods that can help, workouts good enough to help lose weight and tone up but also safe for Osteo and loose joints and anything else that could help me with shrinking back down.

In the past 2 years, I’m down from 220 to about 170. I’m down from a size 20 to a size 14-16. I still have 40lbs left and hoping to get down to a 6ish or 8, maybe and I have 5 years in my mind to do it. If I can get down to my goal, fix what I need to fix diet wise and perfect my ingredient reading I should be able to maintain despite my Hashimotos. I’m seeing that even thyroid isn’t as much of an excuse as people use it. I dropped 20lbs in 4 months on a good dose of thyroid medication and cutting 1 ingredient out. I’m almost 1 month back to the normal (gluten free) lifestyle and finally feeling back to how I was feeling. I just had my thyroid levels tested again and they were perfect.

Right now, I’m trying to buy less processed foods. I have quit drinking Mello Yello (but I did switch to Diet coke for the time being), I’m eating 1 grain meal a day (if that) and the rest are cooked or salad. I do need to cut condiments and I still am drinking my Starbucks double shots (1 a day), I also started to notice my sugar drops when I eat potatoes so I’m switching to sweet potatoes.

The problem is when you have multiple diagnosis’s with several recomendations for diets. Where I have obvious issues with gluten, gluten free is needed (unless I want to spend all day cramping and in the bathroom), I had the diabetic low glycemic diet recommended to me for the reactive hypoglycemia. Cutting everything that was recommended to me feels restrictive. It also makes my OCD mind feel like I’ll be depriving myself and feels like it’s a black/white situation instead of- eat this way and you’ll feel great, eat that way and feel like crap.

I’m working on disassociating food with pleasure or anything related to emotions and trying to associate it with fueling my body and nothing more. Mindfulness helps that. Taking time to savor what I eat and pay attention to it is what I’m working on. Salad tastes great, so does fruit. Sugar and snacks that are heavily processed taste like chemicals but are an addiction- I’ve read all about sugar addiction and cold turkey is the way to go with kicking it. I’ve been thinking about trying a 1 month sugar free diet to try to break it. Just not sure if I have the will power currently. I will start it at the beginning of a month this year, though. Just have to build up and do further research into it to go in armed instead of half assing it.

In my picture, I was 18. I was constantly working out but didn’t know half of what I know now. I was also healthy.

I wasn’t skinny, but I was a good 30lbs smaller than I am now.

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Well, we have the diagnosis for our 2 year old- lactose intolerant

She said we are doing all the right things and told us about the lactose chart and that lactaid milk does still have a lactose content.

I just wish she reacted like I do so we wouldn’t have to worry so much but she also told us the hard part was already done. Now, we just have to get past this picky eating phase and get her to do more than pick at her food then start playing.

I love the toddler phase… so much fun but so annoying as well. Why can’t we have one child who loves all food? On the bright side, we have 2 who love chicken and fish and they both eat salad, love fruit and moderate themselves with sweets. On the bad side- they both pick at their food more than eat and leave more unate food most of the time.

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March for Babies – Support and Join a team for Anencephaly Awareness WV

This is my team for the March of Dimes March for Babies. If anyone wants to join or donate, please feel free to contact me.

https://www.marchforbabies.org/Fundraising/Team?teamId=873029&teamEventId=2831684&si=82f9beeb-ff29-466a-88d8-15ceac1ab8ef&PersonId=5492115

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Dairy free, gluten free, lactose free… oh my

So, my 2 year old daughter and I ate out for my birthday with the rest of the family (My parents, husband and 6 year old). We had one of the best waitresses I’ve had- to the point I thanked her.

She made sure the croutons were on the side so I could eat salad, didn’t include cheese and added the dressing on the side so she could eat. She walked us through the allergy menu and made sure the items for me were totally gluten free and the items for her were fully milk/dairy free. Neither of us had reactions after eating there (I made the mistake of trying to eat around croutons last time and spent the whole next morning hurting and in the bathroom)

I swear, though, trying to get the hang of reading labels to make sure something is truly dairy free (not just lactose free) is really adding extra time to grocery shopping and the number of times we slip and give her something we don’t realize has it is too much.

I know, just like I have learned most of the red flags for gluten, it will take time but right now, dairy and cows milk free is overwhelming.

We have her next appointment tomorrow so I’m hoping we will have an answer- cows milk, casein, allergy, intolorance or virus (unlikely since its lasted since last month). I hate playing the waiting game.

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Day 2 of the Pop Fast

Day 2 on the pop/energy drink fast was even easier than I thought it would be.

Now, on day 3, I’m adding in junk food. I went grocery shopping today and conveniently left out buying any junk food I can eat. (no gluten free cookies, cakes or anything)

I did load up on fruit- that way I can get my sugar fix on either lightly sweetened tea (I bought iced tea bags) or fruit. I’m hoping doing this will help me both feel better and drop another size (at least)
When I was in high school, I cut pop and within a very short time, lost about 20lbs from that alone. Another time I dropped 15lbs.

Yes, I am doing this solely to try to lose weight (ok, and help my blood sugar a bit- but I believe losing weight can help with blood sugar regulation)

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Well, we retested my daughter and she got diarrhea with the red rash after I made gf pancakes from a mix and used regular milk

It has to be milk. It’s been too long to be a 10 day virus. I’m just glad we already have good alternatives for the yogurt, butter and milk she will eat. We just need to find cheese.

I’m thinking about just no longer buying anything dairy so she won’t be tempted and won’t have to see anyone else with it in the house. It could be an allergy, could be casin and not lactose, could be lactose intolerance but I do know it’s not a virus.

 

Any good dairy free cheese or low dairy cheese? I know feta doesn’t give me issues but since we haven’t had her tested for allergy vs intolerance I’m not really wanting to chance it. I have tried the Daiya brand (several varieties) and I personally choose the bloating and gassiness that comes with real cheese (I don’t eat it too often). I am, personally, a fan of goat cheese (adding it to eggs with portabella mushrooms, peppers and tomatoes makes a great breakfast and it goes well on top of a salad)

 

What are some good dairy free cheeses? Low lactose types of cheese? I think I read harder cheeses don’t have as high a content. Daiya is out, no one in this house likes it. (and I have a much wider taste in alternative foods than the rest of my family)

 

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We took my 2 year old to the ER a few weeks ago. 

We were told to keep her away from dairy and her diarrhea (reason we took her) was likely caused by a virus. Well, we took her off dairy and her diarrhea cleared up. We reintroduced it many times and the very last time my mom attempted to give her cows milk, she spit it out and didn’t want to drink it. Each time it has given her diarrhea. It’s lasted way more than 10 days (did test positive for a virus- this specific one lasts 10 days and it’s been well over that and she still gets diarrhea when she eats yogurt, most cheese, ice cream or milk. She’s also developing a taste for my gluten free snacks instead of normal. I have read picky eating can be a sign of a food intolerance. We are pretty sure lactose intolerance (I am) because the diarrhea has been a recurrent issue her whole life. We have an order to have her tested for Celiac due to my medical issues, her sisters gene and her symptoms. 

If she isn’t able to to back to cows milk, it’ll be all three of us women in the house who don’t drink it. Her older sister could easily live without dairy and I’m lactose intolerant myself. 

This is a whole lot of fun going through the tests, dealing with the diaper and trying to figure all this stuff out. Even with the medical help, it is still too long a process. 

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I never thought I’d be the type to let myself go after a marriage and these past 2 years (last year and this year) I’m getting myself back.

I have been with my husband almost 8 years now. Before he and I met, when I was younger, it would take me over an hour just to leave my house. My hair, make up, clothes and everything had to be perfect. After we had our first baby, I had an extra 60lbs (went from 125 to 198 at the end of my first- complicated- pregnancy) and I started stress eating (before that, if I was stressed, I couldn’t eat). I managed to lose 10lbs down to 180 but stuck. I did workouts sporadically but the stress turned to fatigue and even laziness.

With my second pregnancy (the one we lost) my weight stayed the same after the baby was born and I was too depressed to really work on it.

By the time I had my third, I gained up to 220- higher than I ever weighed and was a size 18. This time, I was more active but my thyroid went into hyper due to the toxic cyst and I lost 30lbs in the first 6 weeks and another 20 recently. Now that I’m down to about 170 and a size 14/16 I’m gaining the motivation to continue.

After I had my first baby, I continued with my hair, make up and skin routine but over time, lost it.

In the past few months, I’m working on changing myself. I realized a while back I let myself go so now I’m working on undoing the damage before it becomes harder.

My daily skin routine now involves pre cleanse and cleansing, sometimes exfoliating (not every day- usually 3 times a week to every other day), spraying my face with either rose water or Dermalogica’s Multi-Active toner, moisturizer, then I’ll put on a mask 1-2 times a week. That’s my evening before bedtime routine. My morning routine is the same but after the moisturizer, I’ll put my make up on. That full routine can keep my eczema from acting up too bad. I have found that to keep it down, exfoliating and moisturizing is key.

I’ve studied skin care professionally (I’m a licensed skin therapist) so keeping my skin next to perfect is key. Luckily for me, when my eczema breaks out, it’s mostly still skin colored but the itching does me in. I still get compliments on my skin on a daily basis- I get rid of zits immediately, don’t have black heads and you would have to look at my skin under a magnifying glass to see my pores- my skin has been my pride and thanks to that, I still look as young as I did when I met my husband. I’m heavier now, but I’m also working on losing that (I did make it from 130 to 220, I’m back down to 170 and working on losing the last 40lbs if possible). I’m down 50lbs from 220 to 170 from two years ago (hit my peak weight at the very end of my last pregnancy- but there will be no more pregnancies so I can focus on losing the last bit)

I’m also looking at what types of workouts are best for people with Osteo arthritis and Ehler Danlos Syndrome to try to get my body toned back up.

I’ve been working on trying to get back to how I was in college. Back then, I was active and felt great. I also looked better. I’m not sure how to handle my thinning and really dry hair (the wrong shampoos grease my hair up and make it look wet, when it dries it dries like straw. It’s hard having greasy skin in that one area of my body but then having dry hair. The thyroid issues don’t help at all.)
The selected image is what I looked like in October. I’m hoping to get back to a slightly older version of what I looked like when I met my husband. I’m not trying to look like a teen again (or very young adult) since I’ll be 30 this week, I just want to be about the same size, weight and to feel good again.

The first picture was taken right before my husband and I met (same week)

The one with the hat was shortly after we got together, before I got pregnant and the third was our first Christmas with our new baby (she was 9 months old)

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Day 2 gluten free

I cut gluten out of my diet again. This time, I’m better educated than the first time (I’ve done 3 elimination diets over the years- all three times for different amounts of time and all 3 times I had benefits that were noticeable). This time, I’m doing it after being suggested by multiple professionals and even told to act like I have Celiac and avoid it.

The problem with not being diagnosed by a blood test, but being professionally diagnosed as having Gluten Intolerance is what to say when I am at a restaurant. I cross contaminated myself once by picking salad around the croutons, getting crumbs and ending up running back and forth to the bathroom all morning the next morning. I have read more than one example of people being purposely contaminated by self righteous waiters who assumed they were following the trend and giving them regular food instead of gluten free food so what am I supposed to say when a waiter or cashier asks why I’m wanting the gluten free menu? Do I lie and say I have Celiac? From what my doctor told me, what I did (eliminate it and readd) that’s enough for him to prescribe a gluten free diet to his patients since he has dealt with so many false positive and false negative Celiac blood screens, he no longer uses the tests to confirm or deny the results.

I did find major benefits when I cut it in the past (over the summer from July to November) and reverted back in November and December. Because of the results I got when I cut it in the past (lost 20lbs in 3 months, got rid of my IBS morning diarrhea, was able to drink coffee again with no issues, had more energy, felt better, 0 arthritis flares- just to name a few differences) my doctor told me to ignore the negative Celiac panel and live like I have Celiac Disease since I do have autoimmune issues and gluten itself does play a role (I went on a processed gluten free diet- to avoid feeling better due to eating healthier foods- I ate a ton of gluten free pasta and didn’t cut dairy)

I guess when I get myself into the full swing again, I need to look at other things. I ate a lunch of baked fish (no breading), baked potato and mixed vegetables and my blood sugar dropped within an hour of eating. I have been told to eat sweet potatoes instead of white and to avoid white everything (flour, bread, sugar, etc) due to my reactive hypoglycemia. I’ve also been advised to stay on the low glycemic diet as well as cutting gluten (and not by medical professionals, but due to self testing and elimination diets- diary. I haven’t been tested, but I did find out I’m lactose intolerant as well)

I really wish I could gain the self control to go on the Autoimmune Paleo diet. It’s only 30-60 days and would probably help more than this random trial and error I’ve been doing.

On the other side, my healthy daughter (2 years old) has just had a stool sample taken in and has an order for a full GI panel as well as the Celiac panel. She’s had diarrhea and we have eliminated dairy for the past 2 weeks. We have tried giving her regular milk (got diarrhea again) then we tried giving her cheese and other dairy items- once again, got diarrhea again so it does appear dairy at least is an issue but since we’ve been dealing with more diarrhea from her than just the past 2 weeks (and a rash that comes with it) and our older daughter had a positive gene test for the Celiac gene, it takes around 2 years for an autoimmune disease to start showing, I guess it’s time to get her screened for the first time. Our older daughter has to have the screening on a regular basis and she probably will as well. Once I get the gluten free diet fully down for myself, I may start looking into talking to the pediatrician and testing both of my girls (closer monitored to make sure they don’t miss anything needed)

 

I truly don’t understand why people want to go on this as a diet just to “lose weight” or “fit in” with other people. It’s more expensive, more restrictive and a huge pain when everyone around you is having cake and you’re having to say “no.” I kept re introducing it as a way of trying to convince myself I had no actual symptoms from it so I could go back to eating normal foods- unfortunately, I couldn’t ignore the symptoms and felt sick 100% of the time (even a few times I didn’t realize I ate it). I’m no longer eliminating it as a trial and am now avoiding it and doing the research to “live like I have Celiac” since that’s what my doctor told me to do.

I do have to wonder if beauty and hair products also count- I have Eczema on my hands and face and Seborrheic Dermatitis on my scalp. I’ve started using sensitive skin cleanser (Dermalogica) and moisturizing facial masks for the past few weeks and I LOVE Hand Food from Ulta (hand lotion and scrub) for my dry hands (thanks to the cold weather, Hashimotos and Eczema- fun combo)

The Seborrheic Dermatitis has been an embarrassment for years. I’ve had it since I was a child and it looks like I have dandruff or worse- but it’s just dead skin cells. When people get close enough they can see it’s dead skin but I’ve had 2 managers tell me I needed to get rid of it. If it was that easy, it would have been gone years ago.

I use T-Gel daily and that keeps it from itching, unless I start sweating. I was told it was SD but I’m pretty sure it’s Eczema since I get Eczema outbreaks on my hands and face anyways.

 

My featured image is from when I was 24, a new mom and the toddler was my oldest- who’s now almost 7.